Snowflake Saturday 2025: Uniting Communities for MG Awareness

The Myasthenia Gravis Association (MGA) is thrilled to announce our first-ever Snowflake Saturday, a multi-location event held on June 7, 2025, in honor of MG Awareness Month! With the goal of raising awareness and building community, Snowflake Saturday will bring together patients, caregivers, advocates, and healthcare professionals across three cities for a morning of connection, education, and empowerment.

How Snowflake Saturday Came to Be

The Myasthenia Gravis Association (MGA) is proud to continue its longstanding tradition of raising awareness and fostering community support through our annual awareness event. In 2013, Wichita Support Group Coordinators Larry and Dana Paxson introduced the first annual MG Walk for Awareness, bringing together over 90 participants at Towne West Square Mall and raising more than $4,000 in support of MG awareness.

In 2018, the event evolved into the MGA Snowflake Shuffle 0.1K, incorporating a fun and engaging approach to advocacy.

Now, in 2025, we are expanding our reach by introducing Snowflake Saturday, bringing this cherished event to three locations to further unite and support the MG community across our region.

What is Snowflake Saturday?

Snowflake Saturday is a free, inclusive event aimed at providing valuable information and resources about Myasthenia Gravis (MG) while celebrating the resilience and uniqueness of everyone impacted by this rare autoimmune condition. Each gathering features vendor booths, raffles, lunch, MGA merchandise for sale, and a special guest speaker. Let’s take a look at what’s happening in each city:

Little Rock, Arkansas

Location: Aloft Little Rock West

Address: 716 Rahling Rd, Little Rock, AR 72223

Time: 10:00 AM – 1:00 PM

Special Guest Speaker: Vickie Petz Kasper

We are honored to welcome Vickie Petz Kasper as our speaker in Little Rock! Vickie is known for her empowering presence and inspiring storytelling. Attendees can look forward to a meaningful message about living with MG and embracing life’s challenges with courage and hope.

Des Moines, Iowa

Location: Hilton Garden Inn Des Moines/Urbandale

Address: 8600 Northpark Dr, Johnston, IA 50131

Time: 10:00 AM – 1:00 PM

Special Guest Speaker: Katie Coffman

Katie Coffman was born and raised in Central Iowa. She was diagnosed with Myasthenia Gravis in 2009, at the age of 19. Join us to learn more about her journey. This event promises a dynamic and engaging experience with plenty of opportunities to connect with others affected by MG.

Wichita, Kansas

Location: Chicken N Pickle

Address: 1240 N Greenwich Rd, Wichita, KS 67206

Time: 10:00 AM – 1:00 PM

Special Guest Speaker: Parker E. Bohm, M.D.

Dr. Bohm will be discussing new therapies for Myasthenia Gravis and highlighting an important clinical insight: the need to educate providers on the limitations of oxygen saturation when assessing breathing difficulties in MG patients. His presentation will offer both practical advice and the latest in MG research and treatment updates.

A Big Thank You to Our Sponsors!

Snowflake Saturday would not be possible without the generous support of our sponsors, including:

Register Today!

All events are free to attend, but registration is required. Register here by June 1st! Join us for this unforgettable first Snowflake Saturday and help shine a light on MG!