Hello and welcome to the MGA blog, The MGA Digest.
The MGA Digest is a blog curated by the Myasthenia Gravis Association.
For more information regarding our organization, please visit our website.

To read a specific blog post in full, click on the particular title of interest.
Redesigning Dreams: Sarah Bolton Shares Her Journey with MG and the Inspiration Behind Designing Our Lives With MG
Living with myasthenia gravis (MG) often means navigating a journey filled with unexpected challenges, unanswered questions, and the...
Supporting Mental Health in the Rare Disease Community: Give an Hour's Resources
Navigating a rare disease like myasthenia gravis (MG) can come with more than just physical challenges, emotional and mental well-being...
Back to School with MG: Tools, Tips & Resources for Every Age
Whether you're heading into middle school, starting college, or returning to school as an adult, managing Myasthenia Gravis (MG) while...
Webinar Recap: How the Patient Advocate Foundation Helps Individuals Navigate Cost, Coverage & Care
Living with Myasthenia Gravis (MG)Â often means juggling high-cost therapies, complex insurance decisions, disability paperwork, and...
Antibodies & Myasthenia Gravis: Insights from Dr. Henry Kaminski’s May 2025 Webinar
In May 2025, the Myasthenia Gravis Association hosted an expert webinar featuring Dr. Henry Kaminski from George Washington University....
One Path, Many Journeys: The Adapted Camino de Santiago Experience with Begoña Gallego Reina and Myasthenia Association of Spain
The Asociación Miastenia de España (AMES)  is a nonprofit organization declared to be of public utility and made up of individuals...
Friday Feature: A Conversation with Susie Craig on Food Safety and Life with MG
This week’s Friday Feature shines a spotlight on Susie Craig, a tenured professor in Food Safety and Health with Washington State...
Snowflake Saturday 2025: Uniting Communities for MG Awareness
The Myasthenia Gravis Association (MGA) is thrilled to announce our first-ever Snowflake Saturday, a multi-location event held on June 7,...
Friday Feature: Meet Dawn of Dawn’s Doggie Delights | How One Woman Turned Her Love for Dogs into a Heartfelt Business—While Living with MG
Dawn has been living with myasthenia gravis (MG) since 2002. Over the years, she’s learned how to adapt her pace, listen to her body, and...
Reflecting on the World Orphan Drug Congress USA 2025: A Glimpse into the Future of Rare Disease Treatment
Written by Kathryn Clemens, Community Program Coordinator Last month, I had the opportunity to attend the World Orphan Drug Congress USA...
May 2025: Programs and Events
May is full of meaningful opportunities to connect, learn, and engage with the MG community! Whether you prefer virtual events or...
Friday Feature: April Love’s Path to Hope, Diagnosis & Empowerment
In honor of Autism Awareness Month and Adult Autism Awareness Day on April 18, we wanted to highlight the powerful and deeply personal...
What a Card Can Do: A Simple Gesture with a Powerful Impact featuring Dawn Veselka
In a world where digital communication often dominates, it’s easy to forget the profound impact a simple handwritten note can have. For...
Understanding Medication Risks with Myasthenia Gravis: Take with Caution
Medication Safety Week is an important time to raise awareness about the impact certain medications can have on individuals with...
Strengthening Care Through Clinic Partnerships: Celebrating Our Physicians this Doctors' Day at MGA
Every year on Doctors' Day, we take a moment to recognize the dedicated physicians who devote their lives to improving patient care. At...
Art & Resilience: Celebrating the Talents of Muscle Makers
Creativity has a unique way of healing, empowering, and connecting us, especially in the face of life’s challenges. For many in the MG...
Rare Disease Week: Advocating for Change in Healthcare Policy
written by Mckenna Fulton, Community Program Coordinator for the Myasthenia Gravis Association Over three days, I had the incredible...
Small Acts, Big Impact: How Friends and Family Can Lighten a Caregiver’s Load
Caregiving is a labor of love, but it can also be physically, emotionally, and mentally exhausting. Caregivers of individuals with...
Discover FundFinder: A Resource for Myasthenia Gravis Patients
Navigating financial assistance programs can be overwhelming, especially when funds open and close so quickly. That’s where FundFinder ,...






















