Myasthenia gravis can sometimes make you feel like your world is caving in…but there is a whole world out there beyond MG! It is that time of the year where people take summer vacations, enjoy a little R&R, and take a moment to stop and smell the roses so to speak. However, traveling can cause a lot of anxiety for people. Add MG to the mix and it can be very overwhelming, almost to the point of concluding that “its not worth it.”
We at the MGA believe that life doesn’t stop with an MG diagnosis. Sure, we have to adjust and adapt, but we can still enjoy life’s simple pleasures. Below are some tips to make you feel your best while traveling with MG. Hopefully with a few of these considerations you can see that, well; it is so worth it.
Pack the essentials...and then some.
By essentials I mean medications. Many of us with MG rely on various therapies to help manage our symptoms and it is important to be prepared when abroad. I always suggest packing more medication than you need because you never know what might happen—luggage can get lost, you could get stuck somewhere for longer than you anticipate…whatever the reason, bring extra! Oh, and don’t forget to bring your medications in your carry-on. The last thing you need is your prescriptions stuck in transit.
Plan in advance.
Don’t assume your airline, housing, or sites you plan to visit are all ADA-compliant. Take the time to plan ahead and ask about the accommodations they can offer. Don’t be shy in asking for what you need. The general public is not going to know if an accommodation can be made unless you ask. Be your own advocate and take charge of your independence by planning ahead.
Travel lightly.
If you are like me, you tend to overpack because you never know when you are going to need that 6th pair of shoes. I’ve gotten better over the years, but as MG has taught me, it is important to take only the things you absolutely need. Plan your outfits and make them interchangeable. Moreover, I find luggage to be extremely heavy and it causes me a lot of fatigue and weakness having to lug around those suitcases. Do your research and find luggage that works for you. The brand Away is known for their lightweight, durable luggage. It is a bit of a splurge but if you can afford the hefty price tag, it may save you your health in the long run.
Ensure your insured.
I'm like a broken record but it is true: MG can be unpredictable. I have had to make the difficult decision of cancelling trips in the past as a result and not only is it an emotional decision but it can also be financially devastating. Consider buying trip cancellation insurance or travel health insurance, especially if you are traveling outside of the country. Although this can’t protect you from the heartbreak of canceling a trip, it can protect your pockets.
Bring all the “in case ofs…”
There may be an “in case of an emergency” moment or “in case I get overtired” situation. I like to call these things “in case ofs” aka, things that you may need if things don’t go according to plan. Many people with MG already wear medical ID bracelets, but perhaps you don’t wear it all the time. When traveling, it may be wise to wear it or bring it with you. Additionally, take things that will allow you to enjoy your travel. For example, I saw this collapsible, portable chair you can buy in the event that you need a place to rest. This happens to me even when I’m not traveling; I am always looking for the next place to sit and rest for a few or even lean on, but sometimes that can be even problematic. Tools such as these will give you comfort knowing that you have things you need without sacrificing your joy.
Safe travels this summer and remember, the world is your oyster.