July 2025: Programs and Events

As summer heats up, so does our calendar, with plenty of opportunities to learn, connect, and grow with others in the MG community. Whether you're looking for practical tools, medical insights, mental wellness resources, or just a casual coffee chat with others who “get it,” we’ve got something for you this July. From expert speakers and educational webinars to hands-on support groups and virtual gatherings, every event this month is designed to empower, support, and bring our community closer together. Mark your calendar, RSVP where needed, and join us for one, or many, of these incredible sessions!

Thursday July 10, 2025 | Kansas City North Support Group

12:00pm - 1:30pm 

Primrose Retirement Community of Kansas City | 8559 N. Line Creek Pkwy, Kansas City, MO

“Navigating Stress and Cultivating Wellness," presented by Kathy Logan from Alexion, is a timely session offering valuable insights on managing stress and promoting well-being in everyday life.

RSVP to mckennafulton@mgakc.org by 07/08/2025.

Saturday July 12, 2025 | Kansas City Support Group

10:00am - 12:00pm

St. Joseph Medical Center | 1000 Carondelet Dr, Kansas City, MO 64114

Join Us for a Special In-Person Session on Music Therapy. Discover the healing power of music with Board-Certified Music Therapist Sydney Winders. In this interactive session, you'll learn how music can support emotional well-being, reduce stress, and enhance overall quality of life.

To attend RSVP to mckennafulton@mgakc.org by 07/10/2025.

Saturday July 12, 2025 | Saint Louis Support Group

10:00am - 11:30am 

Glendale City Hall | 424 N Sappington Rd, Kirkwood, MO 63122

Join us for an informative session presented by the argenx team, where we’ll learn more about Self-injection with the VYVGART Hytrulo prefilled syringe. Whether you're considering this treatment or already using it, this is a great opportunity to learn more, ask questions, and feel empowered in your MG care.

RSVP to kathrynclemens@mgakc.org by 07/10/2025.

Tuesday July 15, 2025 | Educational Webinar

4:00pm - 5:00pm CST

Join us for "Introduction to the Patient Advocate Foundation and Resources." Patient Advocate Foundation (PAF) is a national 501(c)(3) non-profit organization that assists patients with chronic or severe illnesses in accessing high-quality, affordable, equitable health care. PAF provides in-depth case management, financial and social needs navigation, patient education, and direct financial aid for eligible patients. PAF works to ensure a more equitable healthcare system and to bring patient voices to the center of treatment and care. Richard Brown has seen firsthand the toll chronic illness takes on a family and how access, affordability, and education are vital in meaningful healthcare. He has dedicated the last decade to helping further Patient Advocate Foundation’s mission to eliminate obstacles to accessing quality healthcare.

Register via Zoom

Wednesday July 16, 2025 | Virtual Muscle Makers 

2:00pm - 3:00pm 

A virtual community for individuals with MG to bring your hobbies to life. A reoccurring monthly group for casual conversation while crafting. Bring your craft and creativity to your screen and connect with others.

Register via Zoom

Thursday July 17, 2025 | Springfield Support Group

5:30pm - 7:00pm

The Library Station | 2535 N Kansas Expy, Springfield, MO 65803 *New Location!

Join Us for a Special Session with Dr. Mamatha Pasnoor. We’re looking forward to hearing from Dr. Mamatha Pasnoor, professor of neurology at the University of Kansas Medical Center. She’ll be sharing information about Myasthenia Gravis, treatment options, and current clinical trials. Dr. Pasnoor is board-certified in neurology, neuromuscular medicine, and clinical neurophysiology, and also serves as the neurology residency program director. It’s a great chance to learn more and connect with others in the MG community.

RSVP to mckennafulton@mgakc.org by 07/15/2025.

Thursday July 17, 2025 | Mid-Missouri Group 

5:30pm - 7:00pm

Shakespeare's Pizza - South | 3911 Peachtree Drive Columbia, MO 65203 *New Location!

Join us for an informative session featuring Keelyn Schwegel from BioMatrix Specialty Pharmacy as she shares “Navigating Insurance with Myasthenia Gravis” – talking about commercial and Medicare insurance and basic requirements by insurance for all of the infusion treatments available.

RSVP to kathrynclemens@mgakc.org by 07/15/2025.

Thursday July 24, 2025 | St. Louis Coffee Club 

10:30am - 11:30am

St. Louis Bread Co. | 10221 Manchester Rd, Kirkwood, MO 63122

Join us for casual conversation and to meet others with myasthenia gravis. Coffee is a Dutch treat. 

RSVP to kathrynclemens@mgakc.org by 07/22/2025.

Saturday July 26, 2025 | Wichita Support Group

2:00pm - 4:00pm 

Evergreen Community Center & Library | 2601 N Arkansas Ave, Wichita, KS 67204

Tracy Stark has been practicing as a Certified Occupational Therapy Assistant for almost 30 years and currently works in home health. 15 years ago, she was diagnosed with Myasthenia Gravis. Tracy will be sharing ways to apply energy conservation principles to your life as well as ways to adapt environment or change ways to increase independence with day to day 

RSVP to info@mgakc.org by 07/24/2025

Monday July 28, 2025 |

6:30pm - 7:30pm CST

Join us for "Rare Community Crisis Response Webinar with Give an Hour." Give an Hour is a national non-profit organization dedicated to transforming the mental health experience through accessibility and understanding. MGA has partnered with Give an Hour to offer structured, evidence-informed training session. We will focus on how to manage conversations with your peers who may be in crisis. There will be opportunities for participants to ask questions and practice real-life application of the covered material. Everyone will also be provided with take-away best practices and an action plan for urgent scenarios. What to expect This subject matter can be deeply sensitive and may evoke difficult memories and strong emotions. Please know that your well-being is paramount. If, at any point during our conversation about suicide and suicide ideation, you feel the need to step away, turn off your camera, or take any other measure to prioritize your emotional comfort and safety, that is entirely okay. Our aim is not to cause harm or discomfort, but rather to equip you with the knowledge and language you need to navigate these challenging topics when they arise in real-life crisis situations. Your mental wellness is of utmost importance, and we appreciate your efforts as we work together to build this essential understanding.

Register via Zoom