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Self-Care with Myasthenia Gravis


Myasthenia Gravis is a rare autoimmune disease that impacts the neuromuscular system. A part of your immune system called complement disrupts signals between your muscles and nerves. Normally this complement system helps your body fight off infections, but with MG the increase in complements may worsen your MG symptoms. You can prioritize your mental and physical health to do your part, making sure you set yourself up for success.  So, what are ways you can take care of yourself and your immune system to minimize your MG symptoms?


Find ways to decrease stress!

Stress triggers your body to produce hormones that can impact the function of your immune system. You may not be able to remove or control stressors in your life, but you can control your response to stressors. This may look different for different people.

  • Do something that brings you joy. This may be trying new hobbies or picking up an old hobby that you used to enjoy. Find time to socialize with friends or family, if that is something you desire. Meet up with friends or arrange for your friends to come to you.

  • Try meditation. There are many free guided meditations online or through different music/fitness apps. If you are not interested in guided meditation, you could also try other types of meditation. Sitting in silence while taking some deep breaths or listening to some calming music as you stretch.

  • Create a relaxing night-time routine. This is the perfect time to reflect on your day and take time to yourself. Shut out your worries and focus on what makes you feel good. A routine could include a bath or warm shower. Maybe your perfect routine is a cup of tea and a good book after your home is quiet. Other ideas could include an oil diffuser, calming music or sound machine, cozy pajamas, or soothing face mask. Take time to put yourself first, when needed.

  • Enjoy nature on a regular basis. American Psychological Association released an article in 2020, Nurtured by Nature. They found that spending time in nature can quiet your thoughts, triggering a physiological response that lowers stress levels and replenishes your cognitive resources. Now, enjoying nature does not have to be a mile hike, although it can be. It could also look like having houseplants in your home, adding a bird feeder to your yard or window to sit and watch, taking extra time walking to the mailbox, or just letting your feet touch some grass (not when it is freezing outside). Just sitting in nature, appreciating it, can calm your mind and relieve stress.

  • Let yourself take naps when needed. Naps have so many benefits, especially for those with MG. While you sleep, your body repairs cells and restores energy. Napping can also improve your sleep cycle, allowing you to get better sleep through the night and regulate your sympathetic nervous system, allowing you to let go of thoughts that are causing you stress.

 

Keep a Healthy Lifestyle!

  • Eat a well-balanced diet. There is no one diet or meal plan that is proven to help the symptoms of MG, but you can focus on eating well balanced meals/snacks to make sure your body has the nutrients it needs. Poor food choices can lead to nutrient deficiencies, which could impact your body’s ability to function at its best.

  • Stay Active, when you are able. It is also important to keep a healthy weight for you and your body. Extra weight can decrease your energy levels, because it takes your body more effort to execute a task. Life can be unpredictable with MG, so when you have the energy to complete a workout or walk, do it! If you only have the energy to stretch, do it! Any body movement is good movement.

 

Taking care of your whole self is important for everyone’s health, caregivers included. The more you provide your body with the nutrients it needs and prioritize your mental health, the better your body will be able to function and the more you can enjoy your life with MG.

 

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