June 2025: Programs and Events

MGA
1 day ago
4 min read

June is Myasthenia Gravis Awareness Month, and we’re kicking things off with a full calendar of programs and events to connect, empower, and educate our MG community! Whether you're looking to learn from top experts, hear inspiring personal stories, or simply connect over coffee, there's something for everyone. From special presentations and support groups to our exciting Snowflake Saturday events across three cities, this month is all about coming together and raising awareness for MG. Take a look at what’s coming up and mark your calendars—you won’t want to miss it!

Sunday June 2, 2025 | Light the Globe for MG: Kansas City Wheel

8:00pm - 12:00am

KC Wheel | 2485 Jefferson Street, Kansas City, MO 64108

Join MG organizations across the globe on Sunday June 2nd as we light the world teal for MG awareness! We're excited to share that the KC Wheel and St. Louis Wheel will both be lit teal on Sunday June 2nd for awareness! Perhaps a landmark in your community may be willing to light it up in teal or simply turn on your porch light in awareness. Take a picture and hashtag #lighttheglobformg to share with others.

Sunday June 2, 2025 | Light the Globe for MG: St. Louis Wheel

8:00pm - 11:00pm

The St. Louis Wheel | 201 S. 18th Street, St. Louis, MO 63103

Tuesday June 3, 2025 | Rescheduled Virtual Monthly Meet-Up (Note the change of weekday)

6:30pm - 7:30pm CST

Join the Myasthenia Gravis Association as we host Henry Kaminski of The George Washington University as he discusses the different antibody types associated with myasthenia gravis.

Wednesday June 4, 2025 | Eastsiders Lunch Bunch

11:30am - 1:00pm

Agape House | 312 SW 19th St Terrace, Blue Springs, MO 64015

"How to Prepare for Your Infusion Treatment" Presented by Show Me State Vital Care.

Join us as we guide you through the steps to prepare for your upcoming infusion treatment. Learn about what to expect, helpful tips for comfort, and how to ensure a smooth experience.

RSVP to mckennafulton@mgakc.org by 06/01/2025.

Thursday June 5, 2025 | Kansas City Coffee Club

9:30am - 10:30am

Urban Egg | 4921 W 119th St, Overland Park, KS 66209

Join us for casual conversation and to meet others with myasthenia gravis. Coffee is a Dutch treat.

RSVP to info @mgakc.org by 06/02/2025.

Saturday June 7, 2025 | Snowflake Saturday - Little Rock, Arkansas

Location: Aloft Little Rock West

Address: 716 Rahling Rd, Little Rock, AR 72223

Time: 10:00 AM – 1:00 PM

Special Guest Speaker: Vickie Petz Kasper

We are honored to welcome Vickie Petz Kasper as our speaker in Little Rock! Vickie is known for her empowering presence and inspiring storytelling. Attendees can look forward to a meaningful message about living with MG and embracing life’s challenges with courage and hope.

RSVP by 06/01/2025

Saturday June 7, 2025 | Snowflake Saturday - Des Moines, Iowa

Location: Hilton Garden Inn Des Moines/Urbandale

Address: 8600 Northpark Dr, Johnston, IA 50131

Time: 10:00 AM – 1:00 PM

Special Guest Speaker: Katie Coffman

Katie Coffman was born and raised in Central Iowa. She was diagnosed with Myasthenia Gravis in 2009, at the age of 19. Join us to learn more about her journey. This event promises a dynamic and engaging experience with plenty of opportunities to connect with others affected by MG.

RSVP by 06/01/2025

Saturday June 7, 2025 | Snowflake Saturday - Wichita, Kansas

Location: Chicken N Pickle

Address: 1240 N Greenwich Rd, Wichita, KS 67206

Time: 10:00 AM – 1:00 PM

Special Guest Speaker: Parker E. Bohm, M.D.

Dr. Bohm will be discussing new therapies for Myasthenia Gravis and highlighting an important clinical insight: the need to educate providers on the limitations of oxygen saturation when assessing breathing difficulties in MG patients. His presentation will offer both practical advice and the latest in MG research and treatment updates.

RSVP by 06/01/2025

Tuesday June 10, 2025 | MG Pride Virtual Support Group

6:00pm - 7:00pm CST

A gathering for those diagnosed with myasthenia gravis who identify in the LGBTQ+ community.

Tuesday June 17, 2025 | Virtual Young Friends of the MGA

6:00pm - 7:00pm

Connect with others in their 20s, 30s, and 40s living with myasthenia gravis and their loved ones. Come and participate in casual conversation and share what's going on in your life.

Wednesday June 18, 2025 | St. Joesph Support Group

1:30pm - 3:00pm

Rolling Hills Library - Belt Branch | 1904 North Belt Highway, Saint Joseph, MO 64506

Join us for our next group meeting and hear from Dave Dobbins, an electrical engineer from Kansas City who was diagnosed with Myasthenia Gravis over 20 years ago. After managing symptoms with traditional treatments for many years, Dave took part in a clinical drug trial that brought significant improvements to his daily life. He’ll be sharing his experience and what has helped him along the way. Whether you’re newly diagnosed, have been living with MG for years, or are a caregiver—come visit, connect, and chat with others who understand.

RSVP to mckennafulton@mgakc.org by 06/15/2025.

Wednesday June 18, 2025 | Virtual Muscle Makers

2:00pm - 3:00pm

A virtual community for individuals with MG to bring your hobbies to life. A reoccurring monthly group for casual conversation while crafting. Bring your craft and creativity to your screen and connect with others.

Monday June 23, 2025 | Virtual Monthly Meet-Up

6:30pm - 7:30pm CST

What is music therapy? How can it help you as you battle myasthenia gravis? Join Syndey Winders, Music Therapist as she shares her expertise.