As we move into November, MGA has a lineup of exciting programs and support events tailored to empower and connect our Myasthenia Gravis community. Whether you're looking to deepen your understanding of treatments like Vyvgart and Rystiggo, connect over coffee, or join a lively discussion on MG care and mental health, there's something here for everyone! Don’t miss out on the chance to learn, share, and grow together. Take a look at our full schedule and be sure to RSVP!
Monday November 4, 2024 | Vyvgart Webinar
5:00pm - 6:00pm
Wanting to know more about Vyvgart? Come and join Lauren Jarman, Associate Director Patient Advocacy with argenx as she talks about the FDA approved therapy, Vyvgart for myasthenia gravis.
Register via Zoom
Wednesday November 6, 2024 | Eastsiders Lunch Bunch
11:30am - 1:30pm
Agape House, Blue Springs Terrace | 312 SW 19th Terrace Street, Blue Springs, MO 64015
Join us for “Taking an Active Role in Your Care” by Alexion, Kathy Logan Patient Education Manager. This presentation will be a combination of learning about the MG-ADL Scoring Tool and how important it is to have a support system and being your best advocate.
RSVP to mckennafulton@mgakc.org by 11/04/2024.
Thursday November 7, 2024 | Kansas City Coffee Club
9:30am - 10:30am
Corner Bakery Cafe | 6721 W. 135th St. Overland Park, KS
Join us for casual conversation and to meet others with myasthenia gravis. Coffee is a Dutch treat.
RSVP to allisonfoss@mgakc.org by 11/05/2024.
Thursday November 7, 2024 | Central Arkansas Support Group
5:30pm - 7:00pm
Regen Med Clinic | 15300 Kanis Road, Little Rock, AR (Please note the location change)
Join us at the Regen Med Clinic for an informative session on Plasmapheresis, led by Dr. Tina Ipe, M.D., M.P.H. She is a double board-certified physician and clinical researcher. She is also an Adjunct Associate Faculty member at the University of Arkansas for Medical Sciences (UAMS). This meeting will provide an in-depth understanding of Plasmapheresis, a vital treatment option for various autoimmune and neurological conditions, including Myasthenia Gravis. Come hungry to learn about plasmapheresis and a few healthy snacks, that will focus on reducing inflammation and decreasing the autoimmune burden.
RSVP to kathrynclemens@mgakc.org by 11/05/2024.
Saturday November 9, 2024 | Northwest Arkansas Support Group
10:00am - 12:00pm
Residence Inn Bentonville Rogers | 4611 West Locust Street Rogers, Arkansas 72756 USA (Please note the change in time and location!)
Join us for a special presentation on Rystiggo & Zilbrysq by Tom Wallace UCB, at our next MG support group meeting. Learn valuable information and gain a deeper understanding of these myasthenia gravis treatments.
RSVP to kathrynclemens@mgakc.org by 11/07/2024.
Monday November 11, 2024 | St. Joseph Support Group
3:00pm - 4:30pm
Rolling Hills Library - Belt Branch | 1904 N Belt Hwy, St. Joseph, MO
Join us for "Taking Charge of Your Care," a presentation by argenx on "MG and Emotional Health." Throughout your MG journey, your emotional well-being may be impacted. Discover how stress affects your brain and body, and explore strategies to manage your emotional health and reduce stress.
RSVP to Donna Whittaker donnasjmo@yahoo.com by 11/09/2024.
Thursday November 14, 2024 | Kansas City North Support Group
12:00pm - 1:30pm
Primrose Retirement Community of Kansas City | 8559 N. Line Creek Pkwy, Kansas City, MO
Join us for a discussion and presentation on "Breathing Equipment 101" by Kerstin Franco, Respiratory Therapist from Focus Respiratory.
RSVP to mckennafulton@mgakc.org by 11/12/2024.
Tuesday November 19, 2024 | Young Friends of the MGA, Kansas City
6:00pm - 7:00pm
Chicken N Pickle | 5901 W 135th St, Overland Park, KS
Come and dine at Chicken N Pickle while you connect with others with MG.
RSVP to allisonfoss@mgakc.org by 11/17/2024.
Thursday November 21, 2024 | St. Louis Coffee Club
10:30am - 11:30am
St. Louis Bread Co. | 10221 Manchester Rd, Kirkwood, MO 63122
Join us for casual conversation and to meet others with myasthenia gravis. Coffee is a Dutch treat.
RSVP to kathrynclemens@mgakc.org by 11/19/2024.
Thursday November 21, 2024 | Lawrence/Topeka Support Group
5:30pm - 7:00pm
Lawrence Public Library | 707 Vermont St, Lawrence, KS
Join us for a meeting in Lawrence where we'll present on the Myasthenia Gravis Activities of Daily Living (MG-ADL) scale, discussing its purpose, when it's used, and why it’s important for assessing and tracking the daily functional abilities of individuals with Myasthenia Gravis. Understanding this scale is crucial for monitoring disease progression and optimizing patient care.
RSVP to mckennafulton@mgakc.org by 11/19/2024.
Monday November 25, 2024 | Virtual Monthly Meet-Up
6:30pm - 7:30pm
Preparing for Surgery - Join us for a session with Dr. Evan Glidewell, Assistant Professor of Anesthesiology at the University of Kansas Medical Center. Dr. Glidewell will share his expertise on preparing for surgery, including insights on anesthesia, pain management, and perioperative care. With experience in regional anesthesia and alternative airway management techniques, Dr. Glidewell will offer valuable information to help patients feel informed and confident before surgery.
Register via Zoom
Comments