Hello, May! May your troubles be less and your good fortune be more, and nothing but kindness come through your door. We have a busy month of programs and events, including the 13th Annual Triple Crown Showdown 5K, Mile Mosey and Tot Trot, patients are free! We hope you can make it out or join us virtually to a few!
Wednesday May 1, 2024 | Eastsiders Lunch Bunch
11:30 - 1:30pm
Agape House, Blue Springs Terrace |312 SW 19th Terrace Street, Blue Springs, MO 64015
Join us for "Taking Charge of Your Care," a presentation by argenx on "The Facts About Coverage." This informative session will explore essential topics like understanding health insurance, important details about Medicaid and Medicare, the process of getting coverage approval, and available options for cost assistance.
RSVP to mckennafulton@mgakc.org by 4/29/2024.
Thursday May 2, 2024 | Kansas City Coffee Club
9:30 - 10:30am
Corner Bakery Cafe | 6721 W 135th St, Overland Park, KS 66223
Join us for casual conversation and to meet others with myasthenia gravis. Coffee is a Dutch treat.
RSVP to allisonfoss@mgakc.org by 4/30/2024.
Thursday May 2, 2024 | Central Arkansas Group
5:30 - 7:00pm
Fletcher Library | 823 N Buchanan St, Little Rock, AR 72205
Join us for “Taking an Active Role in Your Care” by Alexion, Lisa Bulot, Patient Education Manager. This presentation will be a combination of learning about the MG-ADL Scoring Tool and how important it is to have a support system and being your best advocate.
RSVP to kathrynclemens@mgakc.org by 4/30/2024.
Thursday May 2, 2024 | Lawrence/Topeka Group
6:00 - 7:30pm
Topeka & Shawnee County Public Library | 1515 SW 10th Ave, Topeka, KS 66604
Join us for "It's gMG, Now What?" presented by Kathy Logan, patient educator, from Alexion at our upcoming group meeting in Topeka!
RSVP to mckennafulton@mgakc.org by 4/30/2024.
Monday May 6, 2024 | AMP Your Social Media Voice
5:00 – 6:00pm
Join us and Immunovant for an interactive webinar on strengthening your social media presence. We’ll review tips on using social media to create MG awareness and build community connections. Learn all you can before the start of MG Awareness Month!
Thursday May 9, 2024 | Kansas City Northland Support Group
12:00pm – 1:30pm
Primrose Retirement Community of Kansas City | 8559 N Line Creek Pkwy, Kansas City, MO
Taking charge of your MG care may be overwhelming. With the help of the
MG community, argenx has identified some of the skills that could be helpful
when working with your healthcare providers. The following program
topics provide opportunities to discuss and practice these tools:
Preparing for appointments, managing MG symptoms, and communicating with
your healthcare team.
To attend RSVP to mckennafulton@mgakc.org by 05/07/2024.
Sunday May 19, 2024 | 13th Annual MGA Triple Crown Showdown
8:00am - 10:00am
Town Center Plaza | 5000 W 119th St, Leawood, KS 66209
The MGA Triple Crown Showdown 5K Run/Walk and Mile Mosey & Tot Trot is more than just fundraising event for the MGA; it's an opportunity to raise awareness about this autoimmune, neuromuscular disease and learn about the programs and services that the MGA offers. Individuals living with MG register for FREE- contact allisonfoss@mgakc.org for the promo code! Friends and family can use the code MGAFF2024 for $5 off. Be sure to register by May 8th to be guaranteed a t-shirt!
Register at www.mga5k.org.
Thursday May 23, 2024 | St. Louis Coffee Club
10:30am - 11:30am
St. Louis Bread Co. | 10221 Manchester Rd, Kirkwood, MO 63122
Join us for casual conversation and to meet others with myasthenia gravis. Coffee is a Dutch treat.
RSVP to kathrynclemens@mgakc.org by 5/21/2024.
Tuesday May 28, 2024 | Virtual Monthly Meetup - Note date change due to Memorial Day
6:30pm - 7:30pm
Join us and Alexion as we learn about their newest therapy for MG, Ultomiris, presentated by Andrew Gordon, MD.
Register here.