We are officially heading into Myasthenia Gravis Awareness Month! At the MGA, we pride ourselves on spreading MG awareness throughout the entire year, but the month of June is a great opportunity to join together with fellow organizations, healthcare professionals, and MG patients across the country in honor of this rare disease. Take a look at some of the programming and events we have going on this month and be sure to catch us on social media for all of the awareness opportunities ahead.
June Programming & Events
Virtual Youth Group
Monday, June 6th | 6:00-7:00 PM
Zoom
RSVP to info@mgakc.org
Our virtual youth group is for youth with myasthenia gravis and their parents. Join us Monday evening for an hour of fun!
Young Friends of MGA-KC
Tuesday, June 7th | 6:00-8:00 PM
Sweet Kiss Brigadeiro | 213 W. 47th Street, Kansas City, MO, 64112
RSVP to info@mgakc.org
Are you a young person/professional living with myasthenia gravis? Join us for a special dessert treat at Sweet Kiss Brigadeiro, owned by one of our own community members! We will then head to the lawn of the World War 1 Museum to watch for the lights of Union Station to turn teal for MG Awareness Month.
Kansas City North Support Group | IVX Health-Infusions 101
Thursday, June 9th | 12:00-1:30 PM
Primrose Retirement Community | 8559 N Line Creek Pkwy, Kansas City, MO 64154
RSVP to info@mgakc.org
Join us for an informative discussion about the infusion experience as a myasthenia gravis patient.
Eastsiders Lunch Bunch | MG 101 with Diana Wilmoth
Wednesday, June 15th | 11:30 or 10:30?
Blue Springs Terrace, Inc. | 312 SW 19th Terrace Street, Blue Springs, MO 64015
RSVP to info@mgakc.org
Diana Wilmoth, retired nurse and MG patient, will be reviewing the basics of myasthenia gravis. Diana volunteered as the care coordinator for the St. Luke’s clinic for more than 20 years and we are so excited to have her back presenting on this topic!
4th Annual Snowflake Shuffle 0.1K
Saturday, June 18th | 10:30 AM-1:00 PM
Linwood Recreation Center | 1901 South Kansas Street, Wichita, KS 67211
We are gearing up for our 4th Annual Snowflake Shuffle 0.1K! No need to walk or run anywhere, simply come out for fellowship with other patients and families, interactive booths with vendors including specialty pharmacies, and pharma providers who work with myasthenia gravis. Enjoy a boxed lunch, Kona Ice Truck, photo ops and raffles. Patients with MG register for FREE in 2022. To receive a t-shirt, the deadline is May 31st, 2022. Register for the event here.
Virtual Monthly Meet-Up | MG Awareness Panel
Monday, June 20th | 6:30-7:30 PM
Zoom
RSVP to info@mgakc.org
We have an exciting virtual monthly meet-up in honor of June Myasthenia Awareness Month! Join us Monday evening with three of our fellow community members including Kacy Becker, Rich DeGeorge, and Audrey Ford, as they share their experiences with myasthenia gravis.
Coffee with a Coordinator
Thursday, June 23rd | 10:30-11:30 AM
Kaldi's Coffee | 120 S Kirkwood Rd, Kirkwood, MO 63122
RSVP to meridithoconnor@mgakc.org
Meet Meridith at a St. Louis local coffee shop to chat and hang out with fellow MG community members. Please RSVP even if you plan on just stopping by for a bit!
Topeka Area Support Group
Thursday, June 30th | 5:30-7:00 PM
Topeka Library, Marvin Auditorium | 1515 SW 10th Ave, Topeka, KS 66604
RSVP to info@mgakc.org
We are looking forward to hearing from Joe Post with UCB Pharma regarding updates on the work they are doing in the myasthenia gravis space and how it can potentially benefit MG patients.