As the summer sun begins to shine brightly, June brings with it a spirit of celebration, awareness, and community. This month, we're thrilled to present a variety of programs and events that reflect the diverse interests and needs of our vibrant community. Our June lineup is packed with opportunities for learning, connection, and support. Join us as we embark on a month filled with activities that not only inform and inspire but also celebrate the unique stories and strengths of every individual in our community. Read on to discover what's in store and how you can get involved!
Sunday June 2, 2024 | Pickleball for a Purpose: A Myasthenia Gravis Association Event
4:00 - 7:00pm
Chicken N Pickle - St. Charles | 1500 S Main St, Saint Charles, Mo 63303
We are looking forward to seeing you Sunday at our first ever Pickleball for a Purpose at Chicken N Pickle, St. Charles (1500 S. Main Street). The tournament begins at 4pm and will consist of a round robin style. Food and drink will be available for purchase.
Be sure to stop by the registration table and get your raffle tickets to win Cardinals tickets, tickets to the Magic House St. Louis, a Chartcuterie Basket, gift certificate to Chicken N Pickle and more!
For more information click here.
Sunday June 2, 2024 | Light the Globe for MG: Kansas City Wheel
8:00pm - 12:00am
KC Wheel | 2485 Jefferson Street, Kansas City, MO 64108
Join MG organizations across the globe on Sunday June 2nd as we light the world teal for MG awareness! We're excited to share that the KC Wheel and St. Louis Wheel will both be lit teal on Sunday June 2nd for awareness!
Perhaps a landmark in your community may be willing to light it up in teal or simply turn on your porch light in awareness. Take a picture and hashtag lighttheglobformg to share with others.
Sunday June 2, 2024 | Light the Globe for MG: St. Louis Wheel
8:00pm - 10:00pm
The St. Louis Wheel | 201 S. 18th Street, St. Louis, MO 63103
Join MG organizations across the globe on Sunday June 2nd as we light the world teal for MG awareness! We're excited to share that the KC Wheel and St. Louis Wheel will both be lit teal on Sunday June 2nd for awareness!
Perhaps a landmark in your community may be willing to light it up in teal or simply turn on your porch light in awareness. Take a picture and hashtag lighttheglobformg to share with others.
Wednesday June 5, 2024 | Eastsiders Lunch Bunch
11:30am - 1:30pm
Agape House, Blue Springs Terrace |312 SW 19th Terrace Street, Blue Springs, MO 64015
Join us at the upcoming Myasthenia Gravis meeting where we are excited to announce that Dr. Farmakidis will be discussing "New Treatments: Implications for Care in 2024." His insights into the latest advancements, including the new therapy Zilucoplan from UCB, will offer valuable information for our community. As it is MG Awareness Month, we encourage you to bring along a friend or family member to help raise awareness.
RSVP to mckennafulton@mgakc.org by 06/03/2024.
Thursday June 6, 2024 | Kansas City Coffee Club
9:30 - 10:30am
Billie's Grocery | 3614 W. 95th Street, Leawood, KS
Join us for casual conversation and to meet others with myasthenia gravis. Coffee is a Dutch treat.
RSVP to allisonfoss@mgakc.org by 06/04/2024.
Tuesday June 11, 2024 | Virtual MG Pride Meetup
6:00pm - 7:00pm
In honor of Pride Month, the Myasthenia Gravis Association in partnership with argenx, is excited to host a special panel event celebrating the intersection of the LGBTQ+ community and those living with myasthenia gravis. This event aims to highlight the unique challenges and triumphs of LGBTQ+ individuals managing MG, while fostering a supportive and inclusive environment.
Join us for an inspiring evening featuring a diverse group of panelists of individuals with MG and support partners who will share their personal stories, experiences, and insights. This panel is an opportunity to hear about the resilience, courage, and advocacy that define the journeys of these remarkable individuals.
Register via Zoom
Saturday June 18, 2024 | Virtual Young Friends of MG Meetup
6:00pm - 7:00pm
Join other 20s, 30s and 40 somethings with myasthenia gravis from the comfort of your own home. We'll talk about life with MG and learn tips and tricks from each other.
Register via Zoom
Monday June 24, 2024 | Virtual Monthly Meetup
6:30pm - 7:30pm
Join us for an informative session on Plasmapheresis, led by Dr. Tina Ipe, M.D., M.P.H., board-certified physician and clinical researcher with Regen Med Clinic. This meeting will provide an in-depth understanding of Plasmapheresis, a vital treatment option for various autoimmune and neurological conditions, including Myasthenia Gravis.
Register via Zoom
Thursday June 27, 2024 | St. Louis Coffee Club
10:30am - 11:30am
St. Louis Bread Co. | 10221 Manchester Rd, Kirkwood, MO 63122
Join us for casual conversation and to meet others with myasthenia gravis. Coffee is a Dutch treat.
RSVP to kathrynclemens@mgakc.org by 06/25/2024.
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