As we welcome the warmth and vibrancy of July, the Myasthenia Gravis Association is excited to share a month full of engaging programs and events designed to support, educate, and connect our community. From informative webinars and support groups to fun-filled awareness activities, our July calendar is packed with opportunities for you to get involved, learn more about Myasthenia Gravis, and join forces with others who share a common goal. Join us as we continue to raise awareness, foster connections, and empower those affected by MG.
Wednesday June 10, 2024 | Coins for a Cause
3:00pm - 10:00pm
Up Down Kansas City | 101 Southwest Blvd. Kansas City, MO
Join us at Coins for a Cause where 100% of coins purchased will go to the MGA. You must be 21 and have an ID to enter.
Thursday 11, 2024 | Kansas City Northland Support Group
12:00pm - 1:30pm
Primrose Retirement Community of Kansas City | 8559 N Line Creek Pkwy, Kansas City, MO
Join us for discussion and questions with Judy Ray, LPN. Judy is an Infusion Nurse Coordinator at University of Kansas Medical Center. This is a great chance to gain insight into what nurses see in their practice and how to engage and interact with your neurology team.
To attend RSVP to mckennafulton@mgakc.org by 07/09/2024.
Thursday 11, 2024 | Mid Missouri Group
5:30pm - 7:00pm
Daniel Boone Regional Library | 100 W Broadway, Columbia MO 65203
Join us for a special presentation on Emotional Health & Wellbeing, brought to you by argenx. Learn valuable strategies to support your mental health while living with MG.
To attend RSVP to kathrynclemens@mgakc.org by 07/09/2024.
Thursday 11, 2024 | Springfield Support Group
5:30pm - 7:00pm
Eastside Sunshine Church of Christ | 3721 E Sunshine St, Springfield, MO 65809 (Take the first right when you get to the roundabout)
Join us for "It's gMG, Now What?" presented by Kathy Logan from Alexion at our upcoming group meeting.
RSVP to kathrynclemens@mgakc.org by 07/09/2024.
Saturday 13, 2024 | Kansas City Support Group
10:00am - 12:00pm
St. Joseph Medical Center | 1000 Carondelet Dr, Kansas City, MO 64114
Join us for "Taking Charge of Your Care," a presentation by argenx on "MG and Emotional Health." Throughout your MG journey, your emotional well-being may be impacted. Discover how stress affects your brain and body, and explore strategies to manage your emotional health and reduce stress.
To attend RSVP to mckennafulton@mgakc.org by 07/11/2024.
Saturday 13, 2024 | St. Louis Support Group
10:00am - 11:30am
Glendale City Hall | 424 N. Sappington Rd. Glendale, MO 63122
Join us for "It's gMG, Now What?" presented by Kathy Logan from Alexion at our upcoming group meeting.
To attend RSVP to kathrynclemens@mgakc.org by 07/11/2024.
Thursday 18, 2024 | argenx Clinical Trial Update – Adapt Seron
5:00pm-6:00pm CST
Join argenx and the MGA as Dr. Jeffrey Guptill provides an update on the Adapt Seron trial.
Adapt seron is a phase 3 study to evaluate the efficacy of safety of Efgartigimod IV in patients with AChr – gMG, including MuSK-Ab, LRP4-Ab, and gMG patients with no identifiable autoantibodies.
Dr. Jeffrey Guptill is Neuromuscular Franchise Lead in Clinical Development at argenx. In this role he oversees the late-stage clinical development programs for efgartigimod (FcRn inhibitor) and empasibrupart (C2 complement inhibitor). He is also Adjunct Associate Professor of Neurology at Duke University School of Medicine.
Dr. Guptill received his medical training at Virginia Commonwealth University and subsequently completed an adult neurology residency and neuromuscular medicine/EMG and advanced neuromuscular disease fellowships at Duke University. Prior to joining argenx, he was a tenured Associate Professor of Neurology at Duke University.
Register via Zoom
Monday 22, 2024 | St. Joseph Support Group
2:00pm - 3:30pm
Rolling Hills Library- Belt Branch | 1904 N Belt Hwy St. Joseph, MO 64506
Join us for "Taking Charge of Your Care," a presentation by argenx on "MG and Emotional Health." Throughout your MG journey, your emotional well-being may be impacted. Discover how stress affects your brain and body, and explore strategies to manage your emotional health and reduce stress.
To attend RSVP to Donna Whittaker donnasjmo@yahoo.com by 7/20/24.
Monday 22, 2024 | Virtual Monthly Meetup
6:30pm - 7:30pm CST
UCB is proud to have Eduardo De Sousa, MD, FAAN, FAANEM share educational information about a targeted treatment with the MGA gMG community. The webinar will include key details about an FDA approved treatment for adults with gMG, including how it works, what patients and caregivers can expect from this treatment, and helpful points on how to talk with a healthcare provider about gMG symptoms and treatment.
Register via Zoom
Thursday 25, 2024 | St. Louis Coffee Club
10:30am - 11:30am
St. Louis Bread Co. | 10221 Manchester Rd, Kirkwood, MO 63122
Join us for casual conversation and to meet others with myasthenia gravis. Coffee is a Dutch treat.
To attend RSVP to kathrynclemens@mgakc.org by 07/24/2024.
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