Spring is here, and we’re excited to offer a full lineup of support groups, educational programs, and community gatherings throughout April! Whether you’re looking to connect over coffee, gain valuable insights from medical experts, or join a virtual crafting session, there’s something for everyone. This month, we’ll be focusing on advocacy, medical appointment preparation, stress management, and treatment education, along with plenty of opportunities to build relationships within the MG community. Be sure to check out our in-person and virtual options to find what works best for you! Take a look at the events below and RSVP to secure your spot. We look forward to seeing you soon!
Tuesday April 1, 2025 | Young Friends of the MGA - Kansas City
6:00pm - 7:00pm
Puttery Kansas City | 612 W 47th St, Kansas City, MO 64112-1911
Connect with others in their 20s, 30s, and 40s living with myasthenia gravis and their loved ones. Come and participate in casual conversation and share what's going on in your life.
RSVP to info@mgakc.org by 03/29/2025
Wednesday April 2, 2025 | Eastsiders Lunch Bunch
11:30am - 1:00pm
Agape House | 312 SW 19th St Terrace, Blue Springs, MO 64015
An argenx representative will be joining us to discuss the importance of preparing for your medical appointments. Being intentional about your preparation can help you confidently communicate your goals and needs with your doctor during your limited time together. In this meeting, we will explore various appointment preparation methods.
RSVP to mckennafulton@mgakc.org by 03/31/2025.
Thursday April 3, 2025 | Kansas City Coffee Club
9:30am - 10:30am
Urban Egg | 4921 W 119th St, Overland Park, KS 66209
Join us for casual conversation and to meet others with myasthenia gravis. Coffee is a Dutch treat.
RSVP to info@mgakc.org by 04/01/2025.
Thursday April 3, 2025 | Springfield Support Group
5:30pm - 7:00pm
East Sunshine Church of Christ | 3721 E Sunshine St, Springfield, MO 65809
"Navigating Stress and Cultivating Wellness," presented by Kathy Logan from Alexion, offering valuable insights on managing stress throughout the year.
RSVP to kathrynclemens@mgakc.org by 04/01/2025.
Saturday April 5, 2025 | Wichita Support Group
2:00pm - 4:00pm
Evergreen Community Center & Library | 2601 N Arkansas Ave, Wichita, KS 67204 *New Location!
An argenx representative will be joining us to discuss the importance of preparing for your medical appointments. Being intentional about your preparation can help you confidently communicate your goals and needs with your doctor during your limited time together. In this meeting, we will explore various appointment preparation methods.
RSVP to info@mgakc.org by 04/03/2025
Tuesday April 8, 2025 | MG Pride Virtual Support Group
6:00pm - 7:00pm CST
A gathering for those diagnosed with myasthenia gravis who identify in the LGBTQ+ community.
Register via Zoom
Wednesday April 9, 2025 | Iowa Support Group
7:00pm - 8:00pm
Kirkendall Public Library | 1250 SW District Dr, Ankeny, IA, 50023
An argenx representative will be joining us to discuss the importance of preparing for your medical appointments. Being intentional about your preparation can help you confidently communicate your goals and needs with your doctor during your limited time together. In this meeting, we will explore various appointment preparation methods.
RSVP to info@mgakc.org by 04/7/2025.
Thursday April 10, 2025 | Mid-Missouri Group
5:30pm - 7:00pm
Shakespeare's Pizza - West | 3304 W Broadway Business Park Ct, Columbia, MO 65203 *New Location!
An argenx representative will be joining us to discuss the importance of preparing for your medical appointments. Being intentional about your preparation can help you confidently communicate your goals and needs with your doctor during your limited time together. In this meeting, we will explore various appointment preparation methods.
RSVP to kathrynclemens@mgakc.org by 04/8/2025.
Saturday April 12, 2025 | Kansas City Support Group
10:00am - 12:00pm
Dr. Mazen M. Dimachkie, a distinguished expert in the field of neurology, will lead a discussion on thymectomy, a surgical procedure that involves the removal of the thymus gland. Thymectomy is often considered as a treatment option for patients with Myasthenia Gravis, as it can help reduce symptoms and improve muscle strength.
To attend RSVP to mckennafulton@mgakc.org by 04/10/2025.
Saturday April 12, 2025 | Saint Louis Support Group
10:00am - 11:30am
Glendale City Hall | 424 N Sappington Rd, Kirkwood, MO 63122
Join us for "Understanding RYSTIGGO® (rozanolixizumab) and ZILBRYSQ® (zillucoplan)” with Brian Berg, Medical Science Liaison at UCB. Come and learn about the two new therapies approved by the FDA to treat myasthenia gravis.
RSVP to kathrynclemens@mgakc.org by 04/10/2025.
Wednesday April 16, 2025 | Virtual Muscle Makers
2:00pm - 3:00pm
A virtual community for individuals with MG to bring your hobbies to life. A reoccurring monthly group for casual conversation while crafting. Bring your craft and creativity to your screen and connect with others.
Register via Zoom
Thursday April 17, 2025 | St. Louis Coffee Club
10:30am - 11:30am
St. Louis Bread Co. | 10221 Manchester Rd, Kirkwood, MO 63122
Join us for casual conversation and to meet others with myasthenia gravis. Coffee is a Dutch treat.
RSVP to kathrynclemens@mgakc.org by 04/15/2025.
Monday April 28, 2025 | Virtual Monthly Meet-Up
6:30pm - 7:30pm
Join us as we host Jori Houck with the Muscular Dystrophy Association who will provide advocacy updates, the current landscape for Medicaid. We’ll also cover key legislative efforts, what’s ahead for access to care, and how you can get involved.
Register via Zoom
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