It’s hard to believe we are turning the leaf on another year! We thought we’d take a moment and share some of the monumental and milestone moments of the Myasthenia Gravis Assocation (MGA) in 2023!
January
McKenna Fulton joins the Myasthenia Gravis Association as our Community Programs Coordinator. McKenna becomes the MGA’s first second full-time employee!
February
A joint awareness and fundraiser activity is held with Sweet Kiss Brigadeiro and Kendra Scott on the Country Club Plaza in Kansas City.
The MGA partners with Sarah Bolton to become our Virtual Meeting host!
Volunteers gather at the MGA office to assemble new patient packets and materials.
March
The Wichita Support Group represents the MGA at the Wichita State University Health Fair.
The MGA officially kicks off its Central Arkansas Support Group. Several attempted meetings had been postponed due to COVID-19 in the year prior.
St. Joseph, MO Support Group revitalizes after many years through Support Group Leader, Donna Whittaker.
April
The MGA honors its volunteers in Volunteer Appreciation Month.
The MGA celebrates its 2022 donation to MG research at the University of Kansas Medical Center.
May
The MGA celebrates a non-rainy 12th Annual MGA Triple Crown Showdown at Town Center Plaza in Leawood, KS with over 500 attendees! 55 of which were individuals with MG participating or volunteering! Special thanks to presenting sponsors, argenx and Alexion!
In one of its most attended Virtual Monthly Meetups, the MGA hosts a panel of individuals with seronegative MG to share their experiences and educate the community.
June
With the support of argenx, the MGA lights up the Wheel in St. Louis for MG Awareness Month.
The MGA hosts it’s 5th Annual Snowflake Shuffle 0.1K in Wichita, KS!
The MG Pride Group holds its first meeting via Zoom.
The MGA celebrates the FDA’s approval of two new therapies for MG, Vyvgart Hytrulo and Rystiggo!
July
Support Group meetings in full force online and in person in one of our busiest months ever where we met with 75 patients through groups and clinic partnerships in just
five days.
August
The MGA hosts it’s 6th Annual Crown Town Trivia Night where 335 attendees helped raise an incredible $98,000!
September
The Kansas City Coffee Club hosts its first gathering! The Coffee Club is an informal gathering of individuals with MG over coffee held monthly in Kansas City. It models the program that we host monthly in St. Louis.
October
The MGA hosts its 63rd Annual Meeting & Educational Seminar with over 250 registered attendees from 7 counties! It was our first ever hybrid event. Awards were given to the Volunteer of the Year (Bryan Bosch), Stackhouse Award (Donna Whittaker) and Diana Wilmoth Sunflower Award (Lisa Sackuvich)
The MGA partners with Cartesian Therapeutics to speak at the Maryland Bio Technology Conference about the emerging therapies for MG.
November
The MGA attends the argenx Leadership Council in Phoenix, AZ.
The MGA is represented at the Rare Disease Connect in Neurology Conference hosted by UCB in Berlin, Germany along with 24 other patient organizations from across the globe.
December
The MGA prepares to make a $20,000 donation to MG research at the University of Kansas Medical Center.
We want say thank you to all of our partners, volunteers, sponsors for making this year possible. We've got lots in store for 2024 including a new team member! We can't wait to share more with you! Until then, enjoy the holidays and we look forward to connecting in January!
Comentarios