National Nonprofit Day is coming up on August 17th. To honor the day we are providing you with a few fun facts you may or may not know about the MGA. Let’s face it; when nonprofits are successful, we are all successful, and we feel it is important to remember all the aspects that have made this organization what it is today. Check out these fun facts below and of course, happy early National Nonprofit Day!
Did you know?
#1 The MGA was established in 1961! Joan Stackhouse, founder of the MGA, made the move to Kansas City with her husband, Bill, and together, they formed the organization that stands today. Our Executive Director, Allison Foss, paid a visit to our very own founder, all the way out in California. It was a full circle moment and a true honor to meet the woman that changed so many lives of those living with MG.
#2 In collaboration with partnering physicians, the Myasthenia Gravis Association has established four onsite MG clinics. MG Clinics are held during outpatient visits; our program coordinator and patient care specialist meet with patients to not only foster relationships but to ensure patients and their families have the appropriate resources to manage their MG. We currently have MG clinics at:
The University of Kansas Medical Center
St. Luke’s Medical Center
St. Louis University Hospital
CoxHealth-Jared Neuroscience Center
#3 The MGA has a medical advisory board comprised of 12 healthcare providers, all from different parts of our service area. This is a diverse group, many of whom specialize in neuromuscular medicine. The MAC is comprised of doctors of medicine, osteopathy and pharmacy; each of them provide knowledge and insight within their field of expertise and assist us in ensuring the information we provide our patients is efficient, accurate, and up to date.
#4 We currently have 14 support groups and are continuing to expand. At the MGA, we meet people where they are at; support groups are in-person, virtual, and range in age including older adults, young friends, and youth. Our support groups provide a safe space for MG patients, nurture new and old relationships, and cultivate a sense of community. Be sure to check out our calendar as well as our Facebook page (and all other social media platforms) to learn about the next support group near you!
#5 Every year we roll out statistics and review our accomplishments and goals. Part of those statistics are the number of new patient packets we send out to newly diagnosed and those interested in learning more about the disease/our organization. We have come a long way and in the first half of 2022, we have sent out 94 packets already! Although myasthenia gravis is a difficult diagnosis, we believe that with the appropriate support, MG patients can live meaningful, prosperous lives. Research is always developing, new and innovative treatment options are coming to market, and greater awareness is always our motivation.
Thanks for celebrating National Nonprofit Day with us! We would not be here today without you.
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