Who is ready to take on March with myasthenia? It seems as though the tides are turning, and we can finally take a breath now that the virus is slowing down. Nevertheless, we cannot let our guard down just yet. We will be rolling out in-person programming in April, so hang on just a little bit longer!
Before I introduce March programming, I wanted to discuss something that has been on my mind lately. The pandemic has spliced and diced this world in so many ways. It has divided our country and has shaken many of us to our core. The optimist that I am, I always seek out positivity in any situation, no matter how devastating that situation may be. I’m also a realist though. Sometimes things are just unfair, plain and simple. As awful as this pandemic has been, if I squint my eyes and peer in closely, I can see the good. Let’s put it this way; if I am in a predicament, and I feel like the situation is winning, I try to take away something from that situation because if I don’t, it was all for nothing. So, what am I taking?
I am taking the culture shift that now appreciates remote and flexible work.
I am taking the people that have a true understanding of my context and what it means to be immunocompromised.
I am taking a boatload of gratitude for my health, my support system, and science!
What are you taking with you? One thing you can take is the opportunity to interact and get to know your fellow community members. Whether that be through our programming, on social media, or reaching out to a fellow friend with MG, I hope you take something.
Below is our programming for March. We look forward to seeing you!
March Programming & Events
March 1st
Young Friends of the MGA Virtual Happy Hour
6:00-7:00 PM
Please RSVP by 2/28/22 to meridithoconnor@mgakc.org
Have you been able to join in on one of our happy hour sessions? If not, sign up and come hang out with us! We all gather virtually and talk about whatever is on our minds and what is going on in our lives. A short but sweet hour to connect and get a few laughs in.
March 7th
Virtual Youth Group
6:00-7:00 PM
Please RSVP to info@mgakc.org
We have a very special guest speaker joining us at our next virtual youth group. Evren Ayik, along with his mother, Kara Ayik have just written a book, “Extraordinary! A Book for Children with Rare Diseases.” Together, they explore what rare disease means to them. Although Evren doesn’t have MG, he has a lot of insight and passion for the rare disease community. Come support the MGA and another fellow rare disease community member! If you would like to learn more about the book, head here: https://rarediseasebookforkids.com/
March 13th
NW Arkansas Support Group (Virtual)
Topic: What is the MG-ADL Score?
Presented by: Kathy Logan, Alexion
2:30-4:30 PM
Please RSVP to info@mgakc.org
If you have MG, you are probably familiar with the MG-ADL. But maybe not! Whether a new patient or have had MG under your belt for quite some time, get a refresher course on what the MG-ADL is and what your score means for you.
March 21st
Virtual Monthly Meet-Up
Topic: Nutrition with Jamie DeLaurentis, MS, RDS, LDN of Legal Living
Speaker: Jamie DeLaurentis
6:30-7:30 PM
Please RSVP by 3/20/22 to info@mgakc.org.
Guest speaker Jamie DeLaurentis, MS, RDS, LDN of Legal Living with be speaking about the importance of good nutrition! Jamie’s mother has had MG for over 25 years; as a result, Jamie has taken a special interest in understanding myasthenia gravis. For more information go to https://legaliving.com/
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