June is Myasthenia Gravis Awareness Month, an important time to unite and shed light on this often misunderstood and underestimated autoimmune neuromuscular disease. Myasthenia Gravis (MG) affects thousands of individuals worldwide; this month, we aim to educate, advocate, and raise awareness about MG to foster understanding and support for those living with this condition.
Living with MG can present numerous challenges, from fluctuating symptoms to the invisible nature of the disease. Many people may be unfamiliar with the struggles faced by MG patients, leading to misconceptions and stigmatization. This month, let us come together to amplify the voices of those affected by MG. By spreading awareness and understanding, we can foster a more inclusive and supportive society where individuals with MG can thrive and overcome challenges.
Through awareness, educational resources, and personal stories, we can empower MG warriors to share their experiences and break the silence surrounding this condition. Together, the impacts of MG on individuals, families, and caregivers can be highlighted to emphasize the need for early diagnosis, proper treatment, and ongoing support.
We hope you'll connect with us during awareness month.
Sunday June 4, 2023 | Northwest Arkansas Group 2:30 - 4:30pm Springdale Public Library | 405 S Pleasant St, Springdale, AR 72764 Join us for a General Support Group.
RSVP to jrhuff1@cox.net by 6/2/2023
Tuesday June 6, 2023 | MG Pride Group
6:00 - 7:00pm
New group forming for the LGBTQ community which will kick off during June Awareness Month and Pride Month. Group will meet via Zoom led by volunteer Bryan Bosch. RSVP to Bryan Bosch btbosch81@gmail.com by 6/5/23
Saturday June 10, 2023 | 5th Annual MGA Snowflake Shuffle 0.1K
10:30am - 1:00pm
Linwood Recreation Center | 1901 S Kansas St, Wichita, KS 67211
Help us raise awareness for myasthenia gravis at our signature awareness event where you don't have to run or walk anywhere! Just come out, meet others with MG, enjoy lunch, raffles, and a treat from the Kona Ice Truck! Patients are free to attend. Please register here.
Wednesday June 14, 2023 | Eastsiders Lunch Bunch
11:30am - 1:30pm
Blue Springs Terrace |312 SW 19th Street Terrace, Blue Springs, MO 64015
NOTE DATE CHANGE! Bring your own lunch and come and connect with others with myasthenia gravis for a general support group. RSVP to mckennafulton@mgakc.org by 6/12/23
Thursday June 15, 2023 | Central Arkansas Group
5:30 - 7:00pm
Fletcher Library - Central Arkansas Library System | 823 N Buchanan St, Little Rock, AR 72205
Join us for the Power of Partnership, a presentation about Ultomiris, Alexion's new therapy for myasthenia gravis. Presented by Brenda Mass. RSVP to info@mgakc.org by 6/13/23
Monday June 19, 2023 | Virtual Youth Group
6:00 - 7:00pm
This group is for youth and their parents. Connect with us and meet other youth with myasthenia gravis. RSVP to info@mgakc.org by 6/17/23 to obtain Zoom link.
Thursday June 22, 2023 | Coffee with a Coordinator
10:30 - 11:30am
St. Louis Bread Company |10221 Manchester Road, Kirkwood, MO 63122
Join us for a cup of coffee. Dutch treat. Connect with others with myasthenia gravis. RSVP to info@mgakc.org by 6/20/23.
Sunday June 25, 2023 | St. Joseph Support Group
2:00 - 3:30pm
Rolling Hills Library - Belt Branch | 1904 N Belt Hwy, St. Joseph, MO 64506
Please join us as we hear from Diana Wilmoth, RN. Diana volunteered at our St. Luke's Hospital Clinic Partnership. Diana's experience as a nurse and patient leader are the perfect recipe for being able to share the basics of myasthenia gravis in MG 101.
RSVP to Donna Whittaker donnasjmo@yahoo.com by 6/23/23.
Monday June 26, 2023 | Virtual Monthly Meet Up
6:30-7:30pm
Tune in virtually while we hear from our friends at Immunovant and learn more about their clinical trial for MG patients and their work in the MG space. Register for webinar here.